Sunday, March 20, 2022




Awakening is a painful process. It’s brutal. Everything you thought you knew no longer is the way you know it to be. The sun looks different. Foods don’t taste the same. Conversations are held up to a new standard. Then, you find yourself on an island, raising your white flag, praying for another wakened soul to show you how to navigate your new surroundings. It is an unfolding of your soul. The pain is caused from ironing out the creases, trying to remove remnants of the former self. But it doesn’t work that way. The creases are scars, remnants of the journey you trekked to arrive at this destination. To lessen the pain you must surrender. You have to be ok with not being ok. Observe your unfolding . . . . For not only are you awakening to a new world, you are awakening to your true self.


~ S. Moultrup 


Longing for that awakening.

3-20-22

Thursday, March 10, 2022


 

This is the only plan I have. Pretty wide open. 




3-10-22

Tuesday, March 8, 2022

 Struggling


I’ve really been struggling this week with wanting to give up. Everything I’ve gone thru and all that I’ve done to improve myself, my health, and yet I feel like there is so much left to over come. I get so overwhelmed and then lose hope. It’s still massive. I wonder if I am going to be able to find solutions. I can’t move forward until I solve a 50 year in the making lack of self love. 

Self-love: a state of appreciation for oneself that grows from actions that support our physical, psychological, and spiritual growth. Self-love means having a high regard for your own well-being and happiness. Self-love means taking care of your own needs and not sacrificing your well-being to please others. Self-love means not settling for less than you deserve. Self love means accepting yourself as you are in this very moment for everything that you are. It means accepting your emotions for what they are and putting your physical, emotional, and mental well-being first. 

I found the above in something I was reading. While it makes sense to me, it’s just not how my brain sees or believes and not how I have been living. I think most every person I know would not have a clue that outside of work I don’t really take very good care of myself and have very low self esteem. I have become expert at compartmentalizing all the different aspects of my life. It’s almost like I have a few different personalities and bring out which ever I need. I wonder if my brain broke because it became so confused. Maybe it’s just saying WTF. 

Searching for answers just keeps me finding more questions. This is not living. 

3-8-22


                                                          Going on is not a given

Sunday, March 6, 2022

 Degeneration or Regeneration



I long for more moments to be able to experience that connection of body, heart, and mind again. Some days so desperate with almost irrational thoughts of how to create it. My feelings. Where have you gone? The memories from last weekend still with me. Life without feeling is death. 

My hope is fading. It seems at every turn all I find is more questions. At first it feels good to arrive and uncover. But those feelings soon give way to the reality of how enormously fucked up I am. I have so many doubts of ever being able to heal and overcome. It’s overwhelming. I don’t know how much longer I can continue to be here for myself. My days are becoming increasingly harder. I don’t mind the uncomfortable but I’m precariously hanging on to a thread that can snap at any moment. It’s not a matter of if, it’s a matter of when. 

The darkness and emptiness still surrounds me. The castle that I put so much effort into constructing layer by layer turns out not to be that fairy tale for retirement, but instead more of a horror film. I have become a POS- prisoner of self. There are no doors; they have been blocked for many years. The windows have not been clear enough to see through and light only graces the inside because of the exposure of minute cracks due to age. 

Broken brain. Escape is but a dream. I can’t find my way out of the nothingness. The walls collapse, crushing my soul.

3-6-22



Sunday, February 27, 2022


Going outside the lines


A recent group of thoughts made me realize that I haven’t looked at myself in a mirror for many months. The last time I did, I had no real recognition of who that was looking back. The longing to find any semblance of myself has made me even more open to taking risks. 

I did a thing. I cried.
To feel actual tears flowing down my cheeks
A true release
Pink Floyd to ELO to Prince
I sang.
so loud I scared my cats
and then fell off my couch in laughter
I fucking danced, not well, but
I fucking danced! 
A whole gamut of emotions came and went
Every single one savored and fully experienced.
I went in search of answers but
Instead found feelings
Unexpected.
Magic.

Wonderfullyintensivelyoverwhelmimglyexcitingmassivelyunendingdeliciously 
challengingultimateemotionalconnectionawarenessfullspectrumexperience!!!

Holy fuck. 

Yesterday I did a thing. It’s been decades. For a few precious hours I actually felt something- my heart and brain and body and mind were reunited. To experience that comfort and contentment when it’s been absent for so long is not a single word I have in my vocabulary, thus my ode to Mary Poppins Super-cali-fragil-istic-expi-ali-docious! above.

The only thing absent at the end of the day was a hug.

2-27-22


 
You can be the side effect
I’d rather be the dope
-Prince-

Saturday, February 19, 2022

 Broken Brain continues


There’s so many frustrating things about having depression. One is making it  all the way into this current state of Zombie. Pretty devoid of true emotions. Such a shitty place to live. The second thing is why I can’t figure out how to fix myself. 

I’ve been transparent with the fact that I’m currently in therapy. It’s been super difficult to know that I need to trust someone else to help me. It’s taken me awhile but I have been able to reveal things about myself that I’ve not ever told anyone. I do trust that I won’t get hurt there. Uncomfortable sure but that’s expected. You can’t heal what you don’t reveal. I read that somewhere and now try to repeat it to myself prior to my appointments. Trying every week to allow more truth to come out because I know how valuable insight is to my provider being able help me.

The picture that I posted says so much to me. If I answer the question truthfully it’s because it’s hard to give a fuck about much of anything right now. My lack of caring for myself has been at an all time low. I forget to eat or just don’t. I don’t remember to brush my hair or teeth everyday. I wear the same clothes a lot. I haven’t done my laundry in over a month. Finally washed my dishes after a month. I could go on as it’s ugly but it’s my current reality. It’s incredibly tough to admit these things to myself let alone put them here for all to read. I’ve deleted and rewritten this several times but ultimately decided to share. A new level of low. For me. If it’s part of this illness, it truly sucks.  

What does all this mean? Am I giving up or is it just part of this fucked up brain of mine? Will it all come crashing down? Will I step off the ledge?  I don’t have the answers. I’m still searching. I just don’t want it to be desperately because I think that will be too late.

2-19-22



Thursday, February 3, 2022

Broken Brain


Jethro Gibbs rule number 28: When you need help-ask. 
 

Depression. If you’re lucky you could also get the bonus of episodes of high anxiety and flat out panic attacks. I say this in jest but it’s been my reality for months now. Trying to navigate this new reality everyday is challenging to say the least. Every single day is a struggle. Some days demand me to find every bit of energy I can just to navigate the day. 

It’s so frustrating because I think I should be fixing myself and I can’t figure out how. Believe me I try. I’m trying hard to allow the professional to utilize the training and expertise they have to help me. I just keep telling myself I could truly do more harm than good to myself by not listening to them. It’s still difficult to trust and depend on someone else but I’m getting better at it.

So what does it feel like to be depressed? Here’s some of my thoughts as I’ve been dealing with it:

Like shit. Like nothingness. A big black hole. Hopelessness. Frustration and inadequacy. Empty. Worthless. Failure. Drowning. Massive. Messy. Endless. No future. Zombie. Heavy. Shame. Prisoner. Overwhelming. Done with life. Suffocating. On an island full of darkness. Lonely. Loud. Painful. Confused. Sad. Nobody’s home.Life sentence. Trapped. A horror film that I can’t wake up from. 

I’m living with no joy or pleasure or sense of worth.
I can’t get out of my own way. 
I’ve fully lost myself with zero idea how to find me. 
Life without feeling is death. 

I still go to bed and hope I never wake up. Broken brain. Fucked up mind. Simply existing. I don’t know who this is inside my mind but I’m giving my best actress job to most. Not a place I want to continue to live. 

Depression sucks! 

I wish…..                                 



2-2-22



I enjoy the  drawings in this video. 

Sunday, January 23, 2022


 Trying to rest today. Not just my body but my mind too. Always a hard week. So much attached to the memories. 

Friday, January 14, 2022


 The topic of suicide is not exactly something that many people are willing to discuss. I certainly can understand how uncomfortable it may be and maybe hard to understand for many. It’s been on my mind a lot. 

So many changes for me the past two years. Almost everything in my life plan has been altered. Honestly I don’t recognize myself much these days. The darkness and emptiness, the lack of worth, of purpose, and most of all joy; struggling everyday for a reason.to want to continue. For me, like many others, thoughts of suicide are not really about wanting to die but instead about not knowing if I want to live any longer. 

They say suicide is a permanent solution to a temporary problem. But is this always the case? I was reading an article entitled “Rational Suicide”. Just the title intrigued me. The article was about how older adults, especially those in assisted living facilities, have been gathering outside of their facilities to discuss options for suicide. They are creating a plan to choose when they die prior to dementia or Alzheimer’s taking their choice away. At these meetings they share different methods of how to end their own life. These meetings take place away from their residences as apparently this topic is not allowed on the inside. Why? Because the facilities can be punished by Medicare for suicides that happen there. 

As a long time health care provider I don’t have an issue with wanting to be able to die when we choose. I see so much suffering. We should all have this choice. Not just the terminally ill. Protecting life at all costs has never made much sense to me. It’s one of those just because we can doesn’t mean we should. The dilemma seems to be is taking your own life ever rational? 

I’m not sure I can truly answer that question. I say yes it can be. But this is broken me talking. Are my thoughts on this right now rational? Again I feel like they are but….. Right now I am trying to figure out if I really want to keep living. That’s the honest truth. I’ve not put a time limit on it but what I can say is the way I am living right now I cannot sustain forever. Life without feeling is death. 

On a recent pod cast I caught, the psychotherapist was saying that suicide is all about anger and hate. While I could see where he is coming from, for me it’s about some other emotions too, especially pain. The pain of feeling the nothingness and the hopelessness. Not knowing if I’m willing or even want to fight my way through. These are feelings I’ve not had before so who is to say I can be fixed. Doubts easily creep in. 

As hard as I have been working to deal with my physical health issues, I still have so much more I have to go through to get my body well. Then there’s this fucked up mind of mine. This all has taken a massive toll on me. This depression and anxiety and panic attacks. It’s all so foreign and overwhelming. And I’m still so tired. 

The hardest thing is trying to care >>>>>> about myself. I’m not sure if I even know how. 


1-14-22

This happened on 1-15-22





Sunday, January 9, 2022




 2022….It’s a new year. I wish I was feeling the happiness that is supposed to come with the start of a new year. I’m just not there. 

I started this blog to share my health journey, my navigating breast cancer. The one thing I am leaving behind in 2021 is the actual cancer itself. There is always a risk of it returning or getting it in the other breast but while it will be in the back of my mind it’s not at the top of my list any longer. So what is? Physically that would be chronic pain from hips, back, and headaches. But my number 1 priority right now is my mental health.

While mental health care has certainly been out in the public eye thanks to people like Simone Biles and Michael Phelps, I never, in my wildest, ever would have seen myself here. Depression, anxiety, panic attacks, and thoughts of suicide have been a daily reality for me. Most people do not understand that you don’t just wake up and get over it. This is all new to me. I  don’t feel like I’m coping well. Broken. 

I am sure that I have been depressed for much longer than I am aware of. I seemed to manage it until events in my life just overwhelmed me and my ability to cope was interrupted in a big way. I get frustrated because I have been able to find answers and solutions to everything that I have encountered in my life. I’ve depended upon myself for so many years. This is so different and unfamiliar. I don’t know how to fix this for myself. 

To be clear I am seeing a psychologist as I recognize I need professional help. Accepting the help and trusting the process takes time. I have never been in therapy before except for a short forced stint as a teenager. I have no idea how it works or what to expect. It’s very peculiar telling someone things about yourself that you’ve not ever told anyone else. Fixing anything is never easy with no exception for this fucked up brain of mine. It is at times uncomfortable and I must force myself to be honest. I try to remember that my therapist is not judging but they cannot help if they don’t know. I can’t heal if I don’t reveal. 

What I do know is every single day is hard. Every single day is painful. I am tired. I am struggling. My current reality is truly unknown. This is no place to live. 


1-9-22

Saturday, September 4, 2021

                    

Glad you are here

 


Welcome to this fluffy old woman’s page. I created this because I have so much inside that desperately wants out. You have been invited here because I truly need your support during this journey. This really is out of my comfort zone, opening the door to my life, but how can you be there if you don’t know what’s going on? Please share your thoughts as I am always searching for input. It’s much needed right now. 


The posting dates for my blog were stuck for awhile but seem to have corrected for my 2022 posts. This is the first post on my blog. Keep scrolling to read thru DEC 2021

                                    Unexpected…

This year I have been struggling with my health. It’s not something I am accustomed to, so learning to navigate the healthcare system as a patient has been truly eye opening. Trying to find answers and get treatment for the known has been my mission. Hip and back pain and massive migraines plague me daily along with other frustrating symptoms. COVID restrictions set me behind in finding and receiving treatment. At an appointment in May I asked for an order to get a mammogram as it had been awhile. I usually request a copy of the radiology report along with the films but this time I didn’t. I returned to my primary care about a week after the mammogram and was told everything was normal. I didn’t give it another thought. Two weeks later I received a letter from the imaging company asking me why I hadn’t followed up with as there was abnormal findings on my mammogram. I had another appointment the next day so I took the letter and questioned my provider. The answer I received was truly unacceptable. The truth was she never reviewed my scans. I knew I wouldn’t be coming back to that office. So I had to start again and find a new primary care in a hurry as this issue needed addressed ASAP. Not an easy task when you have to choose from a list in your insurance booklet. I got lucky and found a gem of a doctor. 

After a diagnostic and ultrasound sound and biopsy in July, I was diagnosed with breast cancer. So unexpected and difficult to hear. I had to now add cancer to my list of issues and it had to jump to the top priority. Thankfully I knew what surgeon I wanted to see and what my procedure choice would be. I was scheduled quickly and had my surgery two weeks ago. I am healing well from the surgery with a few to be expected issues. 

I am still waiting to know if I will need chemo. I am still waiting to know the course of radiation. I also might have a second surgery. I need more info before making my decision. As a patient, waiting is difficult. 

Please be your own advocate for your healthcare. Get a copy of your records and read what was written. Ask questions. Call your insurance company to get your out of pocket costs. While I mentioned the issue with my former primary care, I have had an issue with each provider I have dealt with along the way(except my surgeons office) from being over charged to scheduling mistakes to lack of communication. Stress is not my friend while I’m dealing with cancer. 

My mind is struggling to make sense of this all. 

Strength

I’ve shared my cancer diagnosis with very few people. I’m a super private person but I’m trying to tell more because I know I can’t do this alone. One thing that has been a trigger for me and not in a good way is when I share my news and they say to me you’re a strong woman. Yes I am a strong woman and proud of it. But what exactly does that mean? I have been grappling to redefine my perception of that term. 

I’ve always been a strong woman for as long as I can remember. I look like I have it all together and nothing fazes me. I am fiercely independent, outspoken and headstrong, and I’m not one to take shit from anyone. If you are my friend I am loyal, dependable, and always have your back often putting you before myself. 

I’ve had no other choice than to be strong. I’ve had only myself to pick me up when I’ve been knocked down and continue on. I’ve never been afraid of making decisions because I know they need to be made, not because it was easy. I’ve been through many things in my life that others may have found unbearable. I’m hardened by those events as they’ve been filled with enough hurt to last my lifetime but I rarely complain or share these hardships. 

But strength is often confused with hardness. I can be perceived as cold, curt, and unapproachable. Having only myself to stand up for me has made me learn to push my feelings deep inside so I can pretend they don’t exist. Over the years this behavior has made it difficult for me to open up to new people; instead shutting the door to guard my heart.

 Most assume I never need anything. I too had convinced myself that I could be an island and do it alone. Being strong all the time takes a toll. I have just finally admitted that strong people need help and support. Behind my smile and I’m OK is truly pain. I often cry alone until I fall asleep or can’t cry anymore. I am so tired right now. Exhausted from everything that has been going on for me in this challenging year of 2021. This rock has many cracks right now. It’s hard to admit these things but I have to be able to be honest with myself and others if I’m to make changes for my mental and physical well-being. 

Having emotions doesn’t make me weak. 

Asking for help doesn’t make me weak.

Saying I am not OK doesn’t make me weak.

Needing support doesn’t make me weak.

I am working on believing these things. While you may have the best of intentions I ask you to please use caution when saying things like: you are so strong, you got this, think positive, you’re only given what you can handle. What if I need to feel like I don’t have to be strong, at least temporarily? What if I need to be allowed to cry, be sad, be mad, or to just let go? These are things I haven’t allowed myself to do for so long.

Please allow me to be human so I can find my way back. 





 Mind Full




This is one of my favorite pictures. So simple but speaks to me so loudly. My mind is always working. Sometimes so fast that I can’t keep up. Maybe that’s why I love learning. I always assumed this is not the norm for everyone but it’s always been my normal. I used to hope that one day I’d be able to plug into a projector and show the movies in my mind. I thought that would be so awesome to have an actual visual, to see my own imagination, and my reality. It’s hard to quiet my mind. It’s been on overdrive for the past few weeks, saturated with stressful and anxious thoughts about what’s happening to me. I sometimes look down and realize words are coming out of my hands. An Italian thing? Am I going crazy? Two weeks ago I broke. Temporarily. I just could not handle any more input. This week it happened again, my thoughts were dark. I get scared. This has affected me in so many unexpected ways. So much harder than I have imagined. Being alone isn’t beneficial during these moments. 



8-31-21

I’ve never been successful at the ledge because I’m afraid of heights


I went to the ledge today. It has been such a long time since I was here. 
It looked so different.
Massive.
I walked back and forth most of the morning, stuck. 
Drowning in the stories in my mind.
I had an appointment to get to. 
We both knew something was not right.
The nature of the appointment delivered with honesty and compassion brought me back.
I was able to focus and walk away from the ledge.
I’m sure she didn’t realize the rescue.

But……I am still afraid of heights. 

___________________________________________________________________

This is just all so overwhelming to me. So much to take in. My mind just keeps going and filling with so many different scenarios. It’s hard to turn off, to control, to redirect. Not having information, not knowing a plan for what’s next is definitely a source of this fragile mess of confusion. 

What are some coping mechanisms you have used in your life when things become overwhelming? 

Being Alone

Loneliness, isolation, life changes


I made a conscious choice to live alone. For the most part I’ve enjoyed it over these many years. I’m admittedly set in my ways. I hadn’t really ever felt lonely but I realize that has now changed. While I’m sure many people are blaming COVID I know that my recent life’s changes are the main culprit. COVID definitely hasn’t helped.

After 22 years in Jan 2020 I had to give up my Surgical Assistant business due to my back and hip issues. It was a difficult decision and more so the transition from self employment and doing my own thing to having a boss and a structured work schedule. I made the choice because I need an income to survive. I like teaching and I had worked part time for this company for a couple months before accepting the full time position so I knew what I was getting in to. What was unexpected was COVID.

In March 2020 I was sent home with a laptop and had to suddenly adjust to teaching online via live video classes. I was fortunate that I had a really great group of students so we all figured it out as we went. I went many weeks at a time without ever leaving my property. My students were my only real contact with other people. I settled into this isolation not realizing I was cut off from normal conversations. Yes I lectured 5 hours a day for 4 days a week. Of course we had interactions and discussion during class but student teacher is not a substitute for conversation amongst adults. 

COVID 2020 was good to me because I was able to get a paycheck while working from home.
COVID 2020 was not so good for me because it halted my treatments for my back and hips.
COVID 2020 was not good for me because the isolation from others has made me retreat even more deeply inside of myself.

Working in the OR for so many years always provided that human interaction for me. Even with the serious nature of the work there was always a lot of conversations from current events or politics to down right laugh out loud hilarious subject matter. Smiles, handshakes, hugs, and many other greetings were freely given. All this was part of why I loved working in the OR. But I had to walk away. Shortly after that COVID stormed into all our lives 

I thought I was fine; comfortable with this isolation. Now I feel differently. Lonely for the first time in so many years, longing for people to converse with. I’m unsure whether I have people to share my thoughts with that are willing to listen and share back. I’m trying to navigate this new reality and I don’t want to make irrational decisions about my health. I want to have input from others as just talking with myself doesn’t allow for that. My thoughts are all over the place. I certainly respect the knowledge of the physicians I am seeing but I am still the one that has to process the info and decide what to do. It’s hard to ask for help. It’s hard because I don’t really know who is willing to be a part of my support system and what they are willing to offer. Who is willing to be honest with me? To kick my ass when needed? To check in to see how I really am?  Where do I look to find those people?

Alone with my thoughts. 

9-6-21

A high rise of compartments 

Separate the facets of my life

Different in each

Some not often seen

Safety in others 

Convoluted paths become blocked

Narrowed choices

Emergence

How will it end?

Perhaps a beginning


9-9-21

 This is a big week. Lots of info to be gathered. Decisions to be made.

My mind is on overdrive.



9-14-21


                                                              9-10-21

 Nothing good 


    The last few weeks have been full of so many peaks and valleys. For me one thing hasn’t changed. I cannot find one thing good about cancer. 

    My emotions have been raw and fragile. I left a recent doctors appointment and sat in my car and cried. Some of the things said to me were so inappropriate  and insensitive. I really was dismayed that this provider was one that deals with cancer patients every day. One thing that I have realized having to see different specialists is that they sometimes they forget that there is that there might be more going on in a person’s life than the issue that they treat. That is the case for me. 

   Finding out I had cancer was just another thing to add to my plate. Emotionally it has pushed me right to the edge. I’ve had to really be honest with myself if I wanted to be able to get off that ledge. I realized how tired I was of living in pain physically and mentally. I realized how poor a quality of life I was living. I needed to  start finding answers to set me on a different path. This cancer needed to be addressed first.

   Everyone’s cancer journey is unique. We all understand that some people certainly have a more aggressive type or poorer outcome. But that shouldn’t have anything to do with your individual journey. My thoughts or feelings during my own journey shouldn’t be compared to another. But yet here was a doctor doing just that to me. Saying I need to be more grateful. It could be so much worse. And more. I felt they were trying to make me feel that my thoughts and feelings were invalid. They were dismissive of the rest of my story. It was very upsetting. I’m in a vulnerable state. It was uncalled for especially by a healthcare professional who I’m supposed to look to for care and support. I will never be grateful to have cancer. 

   I will never apologize for having feelings. I’m not looking for sympathy but being one who has practiced being strong in all the wrong ways, ie rarely showing feelings perceived as weakness, I have been trying to allow myself to let some of the crap out. To be told to be positive, be grateful, be strong, I’ve done that most of my life while shoving the rest deep inside. It’s left me in a fucking mess. I’m trying my best to let myself just feel how I do. Everyday is different. I am grateful but not about having cancer. I do think positive but not about having cancer. I am strong. Just not every day. Cancer can do that to me. I’m allowed. I’m pretty sure it’s a step in the right direction in order to heal myself. 

   I still cannot find one good thing about cancer. If you do, you’ve not had it or you’re just fooling yourself. It’s been a mind fuck for me. I’m getting there. 



9-21-21


Not one good thing


 9-21-21

 


That’s the thing. I don’t know. I just don’t know. I have no fucking clue how to figure that out.

9-25-21


“Keeping a positive outlook is proven to help with stress management, but when someone says to "think positive" or "be optimistic" during a time such as cancer, it can be much easier said than done. We know that cancer isn't all rainbow and butterflies, and once a patient enters a dark mindset, it can be hard to get out of it.”

I think I’m doing OK and them BAM. Those thoughts of what’s the point come flooding right back in. I’ve tried to be conscious of what’s happened or what’s different on these days. I believe today’s trigger was I received my last actual paycheck from work. It was the last of my vacation/sick time. While I have applied for short term disability I have no idea how long that takes or if I will even be approved. So that check brought out not only that I now have zero income but also reminded me of the job itself.

I haven’t really talked about my job much because it is another source of stress that I’ve shared with few. That truth is I was being bullied and intimidated for the last several months. It certainly didn’t help my health being in that environment for so long. I tried a few times to express this but my concerns and complaints were not taken seriously and I essentially was told I was part of the problem. That is until 2 days prior to me taking medical leave. The truth eventually comes out and it was apparent those last couple days. I even got an apology but by then my focus was completely on my health. 

I am definitely concerned that my absence will not have solved anything but instead will have made things worse because it will not have been addressed. I don’t really have an option of not returning as I am in a position where having health insurance is a requirement. Just thinking about that day brings stress and anxiety. It also stirs up those thoughts of what’s the point. Why am I putting myself through all this?

Why? I don’t have family. Very few friends. No one who really knows me well. I think if I wasn’t here maybe a few people might feel sad but within a week or two my memory would be all but forgotten. It’s hard on some days to find reasons to get out of bed. I get so tired. I wonder if I’m just done. How much more can I endure? How much do I want to? It’s just the truth.

9-25-21

 

                                              Dark or Light


It’s the night before

A major change is about to take place

I’m pretty calm about the event but

Unsure of what will transpire

I know there will be pain to endure

To get healing

My mind accepting of this change 

Time will be what tells me

About the journey

So desperate for success

In many unknown ways

The difficulty that’s been encountered along the way

Has been hard

But new and interesting 

Trying to find understanding 

But is that really it?


 

Today is hard. So much has changed. When I think back to my diagnosis and then my visit to my surgeon I was so sure of myself and what path I wanted to take. But then more knowledge flooded my mind and I knew I was wrong.

So much time to digest all the scenarios of how life was going to be  for me. So I changed my mind and went a new direction. Everything was telling me to have a mastectomy. Screaming it. Was I crazy or irrational for this new choice?

I need to fix me now. When you’re older you don’t think about 5-10 years down the road. The quality of my life needs to change in the present. Other health issues need to be addressed too. This cancer just showed up and added to my list. I knew I wouldn’t do the radiation that was required. I would worry about the cancer returning. I didn’t want to wait those weeks and delay working on my mobility. 

So last week I had the mastectomy. My breast is all gone. It’s been hard managing by myself. The discomfort and pain has been much more than I expected. The drains are not easy to manage in the chosen location. Normal daily activities have been a struggle. 

Today was hard. I’ll just go to bed and start again tomorrow. 


10-5-21


The power of words



 

 Today is a very low energy day for me. Yesterday left me exhausted. I have to admit that the recovery from this surgery has been the hardest and most painful thing I’ve had to deal with in many years. I couldn’t find relief yesterday until I finally broke down and ingested a combo of drugs that allowed me to pass out. It’s hard to admit my mind and my body have different ideas. Some days I wonder if I can improve on today’s reality.

What’s on my mind today is the word cancer. Just writing it, saying it, thinking it evokes so many different thoughts and emotions for me. But what I’d like to address is what that word does to others. It’s been interesting and surprising and  hard and disappointing to watch others react when I tell them I have cancer. It’s almost like I have the plague and need to be avoided. With one word I’ve become someone new. It’s hard to understand but it’s what I’ve observed. People don’t know what to say or they tread carefully or give you the think positive, your strong, you’ve got this- all which I addressed in my earlier post on being strong. People say if you need anything just let me know but what I actually need is for you to just treat me the same as you did before I told you I had cancer. I am not cancer. I am still me. Can we just talk about random stuff whether silly or serious. Ask me how I am that’s fine but know I don’t always want to talk about my cancer and if I do I really just want someone to listen. But instead people step back and avoid interactions. I don’t get it. 

My journey so far has been very lonely. I accept it and am just doing the best I can. I know the choices I’ve made and how I choose to be a private person. Doesn’t mean it’s not hard. 

With so much time on my hands I’ve been doing a lot of internet reading. I’ve been looking for something to share with others so they don’t have to feel so awkward when talking to me or anyone else with cancer. These 2 pages are well written. Just an FYI: They are from the view of a chaplain of Christian faith but lots of good info for all

https://www.hopehasarrived.com/what-not-to-say-to-someone-who-has-cancer/

https://www.hopehasarrived.com/what-to-say-to-someone-with-cancer/

I hope something I write here might help you or someone you know. 

Yes I have cancer but I am not cancer. I’m still the fluffy old woman you knew before! 

Don’t be a ghost


10-7-21


I still can’t see in the dark


 

I wish I could see something beautiful. I’ve been struggling the past few days to find the light, existing instead in the darkness of my mind. I don’t know if there was a trigger I only know I’ve been wandering aimlessly trying to make sense of it all. The days when recovery from this surgery is physically painful I often tell myself I deserve to feel every last bit of it. Why am I putting myself through it all? 

Things like having surgery appears to others as moving forward. There are times I believe that then the darkness over takes me and I just think it’s self punishment. Why does my mind tell me these wicked things? The answers can vary from minute to minute. 

Where is the desire to do. When I look ahead it seems so empty. Devoid of any images and even thoughts of what it looks like. How can I reimagine the future when it seems like a big black hole? 

I’ve been told to see a big blank canvas that can become whatever my heart might long for. But I can’t find any paint. The question is do I really want to. It’s just out of my current reality to see anything ahead. More anxiety and stress.

What makes me blind? Again do I want to know? I can’t honestly answer yes. The darkness can be a comfortable place at times. As much as this doesn’t make sense I don’t feel judged in the darkness yet at the same time the feeling of doom can overwhelm. More mind fuck.

Spending so much time with myself in the dark and I think I’m still so lost. Broken but not beautiful. This may be the end. 


10-11-21


 Connection. People. Where do you find in this new age of COVID-19? 

Longing for all and any weirdos, black sheep, oddballs. Always been my peeps. How do I reach you? Talk to me. I know you’re out there somewhere. 



10-12-21

 I found this article today. I could relate to so much of what was being said. I thought I would share. I am not okay. Some days are better than others. Yes I have started some counseling but so far I have not found it to be a benefit. I hope everyone has access to help. 


Cancer is hard – physically and emotionally. The diagnosis alone can trigger fear, uncertainty, and stress, all of which can be exacerbated throughout prognosis discussions, treatment decisions, procedures and just managing the normal activities of daily living with this dark shadow lurking in the background.

Anxiety is also part of the mix, even when a patient moves out of treatment and into survivorship. Undergoing scans to monitor for possible recurrence. A health change even years after getting the “all clear.” Annual physicals with their primary care physician.  All these situations can trigger the same overwhelming emotions the patient felt throughout their initial battle with cancer.

For some, cancer feels like a life sentence that carries an enormous emotional penalty. Which is why supporting a patient’s mental health needs is an important component of a comprehensive care plan.

Mental Health Challenges

A cancer diagnosis and subsequent treatment can bring forward several mental health issues, the most common being anxiety, depression, and adjustment disorder. While patients who have struggled with these and other mental health disorders in the past are more susceptible, the cancer diagnosis and all that comes with it can trigger symptoms in any patient. It can also exacerbate disorders that had previously been controlled.

While most symptoms will fall on the mild end of the spectrum, they can evolve over time into something more severe and long-lasting. For example, though uncommon, some cancer patients find themselves with symptoms much like post-traumatic stress disorder (PTSD), usually resulting from a traumatic experience during treatment such as an adverse or unexpected surgical outcome.

Many patients also struggle with feelings of guilt related to their illness. Guilt could stem from thoughts about not being able to manage chores or tasks as well as before. They may also experience worry that they are a “burden” to someone else. Guilt is not always rational, but if left unaddressed it can cascade into anxiety, depression, and even anger.

Finally, it’s important to recognize that cancer-driven mental health issues can impact the very relationships patients rely on for emotional support. Feelings of guilt, despondence, detachment and even shame can take control of a patient’s internal dialogue and create distance between them and their loved ones. Again, the emotions aren’t always rational. But when someone is sick, or treatment has taken a toll on their appearance and/or stamina, it is easy to fall into an emotional hole that can overwhelm personal relationships.

Early Attention is Key

It is vital that mental health issues be assessed and addressed as early as possible in a patient’s care plan. Symptoms are not always obvious. The patient who is upbeat and positive at the clinic may be falling apart as soon as they are alone. Or the patient who starts treatment determined to beat their cancer can, over time, become hopeless or overwhelmed.

If patients in need are not given the resources to manage the internal dialogues pecking away at their emotional fortitude, it can have a domino effect that impacts treatment outcomes, long-term health and wellness, and the interpersonal relationships they need in the battle for their lives.

To make that happen, the patient’s clinical team can look for signs that they may be struggling. They can also integrate mental health assessments into their standard practice, approaching it in the same manner they do other health issues – straight forward and empathetic and without judgement. It can be as simple as inquiring if the patient is okay or letting them know it is normal and okay to not be okay – and that resources are available to help them manage their mental health in the same way resources are available to help them manage pain or nutritional needs.

The Mind-Body Connection

Helping a patient with their mental health struggles can be as simple as having someone that is not on their medical care team or in their family or circle of friends who will listen to and reassure them that their thoughts and feelings are normal and understandable; someone who can give them the tools to cope with what they’re experiencing. In some cases, a patient may only require a few sessions for them to feel emotionally stronger. In other cases, more intense or longer-term therapy may be necessary, such as when a pre-existing disorder has been triggered by their diagnosis. What is important is getting the patient the support they need before it spirals out of control.

There is a strong connection between the mind and body. What impacts one will almost always impact the other. For cancer patients struggling with mental health issues, helping them get to an emotionally healthy place can change their entire outlook and empower them to withstand the many challenges they will face whatever their outcome might be.

Written by Ann Leach MSW, LCSW


High and Low…the staircase goes up and down


 

What looked to be a promising week just didn’t end up that way. After 18 months of delays this was the week I was finally going to start some treatments with pain management to begin working on my mobility. That happened at the beginning of the week and yes finally a positive step for my health. Unfortunately at the same time there has been a set back in my healing from surgery.

Monday brought with it the beginning of issues with my incision. It is coming apart…dehiscence is the medical term. Several spots. One area is deep. Started out small and has grown 4x bigger. Had part of it debrided, cleaned, by my PC. Just makes my heart sink thinking about it all. Hoping beyond it all that it doesn’t get infected. No one wants complications but it’s not something I can control.

That’s just it. I will beat myself up wondering what could I have done different? I will blame myself. Did I lift or do too much? Could I have bandaged it better? It’s probably not totally my fault but my mind automatically goes there. I shouldn’t be surprised as I certainly am not a very healthy being right now. My body or my mind. Of course they go together. 23 days post op and my tissues are still not strong. It’s another reminder of how I have failed myself. Not a very good job care taking. Not reaching out for help.

Ugh. A couple good cries this week for sure. Hard to stay away from those thoughts of what’s the point and why bother. I will try to keep my expectations low this week. I am trying hard not to get overloaded.


10-24-21


It’s been a bit since I’ve posted here. I’ve still been writing but privately. My days became darker and darker and I scared myself because I have come very close to taking my own life on 2 occasion over the past few months. I realized I needed help. So I’m getting some. It’s not easy to reach out, it’s not easy to trust, its not easy being honest. I don’t know what will happen. For now, I’m not OK but I am safe from myself.



12-3-21


 

                                    Unexpected… This year I have been struggling with my health. It’s not something I am accustomed to, so l...